Lifestyle

Walk to prolong lives of CF kids

Warwick teenager Peter von Stieglitz is working with his mum, Clare, to start a Great Strides Walkathon in Warwick.
Warwick teenager Peter von Stieglitz is working with his mum, Clare, to start a Great Strides Walkathon in Warwick. Kerri Burns-Taylor

A DIAGNOSIS of cystic fibrosis used to carry a life expectancy of just 10 years.

Today, children like Warwick teenager Peter von Stieglitz can look forward to much longer lives.

The 13-year-old and his mother, Clare McHugh von Stieglitz, are starting the Great Strides Walkathon in Warwick to help keep research into the genetic illness going.

The national event is a fundraiser for the Cystic Fibrosis Foundation, which offers support to affected children and their families.

Mrs McHugh von Stieglitz said she and Peter wanted to give back to the organisation that had helped them through hospital stays.

"We do what we can for them," she said.

"We haven't needed a lot of assistance, but when we do, they are there.

"As a baby, association workers would come and perform physio on Peter several times a week."

The dedicated mum said the association received little funding and relied heavily on people's generosity.

"They get 46 cents per person in government funding - that's it. The rest is fundraising and they support about 1000 kids in Queensland," she said."

"The association also supports research, which is increasing the life expectancy of these kids born with the most common genetic illness."

Cystic fibrosis is a life-threatening genetic condition and affects one in every 2500 children in Australia.

It is a degenerative condition that can affect the lungs, digestive system, liver, reproductive system, bones and sweat glands.

Babies with the condition today may have a life expectancy beyond 50.

Peter's dad Lewis said children with the condition are essentially isolated during hospital visits and the average two-week stay can be extremely hard for youngsters.

"Being in hospital is incredibly boring because the kids can't associate with other kids with cystic fibrosis because they can catch each other's bugs," he said.

The association provides much-needed "boredom buster" packs for these kids.

Mr von Stieglitz said the road ahead for people with cystic fibrosis was not an easy one.

"It's a long-haul thing and isn't going to be solved in the near-future but research is moving slowly," he said.

The Great Strides Walkathon will be held in Warwick next month.

 

Join in

 The Great Strides Walkathon will be held on October 21 at the Riverwalk.

 To register, visit greatstrides.com.au.

Topics:  cystic fibrosis, fundraiser



Motocross accident on property off Cunningham Highway

The ambulance has been called to an accident at Gap Creek Farm.

Rider comes off motocross bike on Southern Downs

Weather outlook after rain early this morning

More rain is forecast for the Southern Downs

Weather outlook after Southern Downs residents wake to Sunday rain

PHOTOS: Morgan Park packed with racers

Chris Lamberth made the trip to Morgan Park from Toowoomba.

THERE'S little doubt Warwick is becoming a hub for motorsport action

Local Partners

9000 reasons to support our community clubs

Community clubs are good at what they do. They are not so good at telling the world about what they do, as Clubs Queensland CEO Doug Flockhart explains.


Bonus point gets Dan and Carleen over the line on The Block

Dan and Carleen in their winning living and dining rooms in a scene from The Block.

BABY boomers win living and dining week as show hits halfway mark.

Olivia Wilde having a girl

Olivia Wilde revealed she is expecting a baby girl.

Pottery club to put students' creations on show

Caitlyn Hennoste paints coloured slips on her bird feeder.

Stanthorpe Pottery Club will put stunning creations on show

Michael Palin: Terry Jones dementia is 'painful' to see

Michael Palin has found Terry Jones' decline "painful to watch"

Diverse works on show at Robert Channon exhibition

Artists Leon and Bruce Ward at the art exhibition at Robert Channon Wines' Singing Lake Cafe.

Robert Channon Wines has transformed into an art gallery

Daniel Radcliffe hoped for haircut anonymity

Radcliffe thought shaving his head would make him more anonymous

Rural properties expected to soar as investors seek income

Rural properties are should become highly sought after

Property 200m from ocean selling for just over $100K

BEACHCOMBER PARK: Work has started on a new $19.2 million development at Toogoom.

The estate's developer is offering huge discounts for early buyers.

UPDATE: Former rodeo champ's sale rained out, now back on

Larkhill local Ken Consiglio is having an auction of most of the things on his property.

'People kept showing up and we had to turn them away'

First stages of $25 million housing development underway

New development on Madsen Rd - The Springs.

The blocks of land are much bigger than usual

Couple build their own 'tiny house' for $45k

Holly Bowen and Oli Bucher built their "tiny house" themselves, only hiring a plumber and an electrician. Photo/supplied

The house, which is built on a trailer and can be towed.

Rocky proves prime real estate in latest REIQ report

Kas Woch sold this Wood St home in Depot Hill for $107,000 in August.

A new investor's market as Rocky house prices hit lowest in state