THIS Saturday is a day one Maryvale family has been anxiously waiting for - and fearful would never arrive - for a long time.

Nine-year-old Angus Bowles has received his plane tickets and passport and this weekend will make his way to America for a specialist procedure that will hopefully change his life.

Angus, who has the rare Pallister-Hall Syndrome, has received government funding so he and his parents, Sonya and Phil, can travel to Texas for treatment.

The Warwick East State School student will undergo laser treatment to shrink a benign brain tumour.

Sonya said she was experiencing a myriad emotions and spoke through tears when describing just how important the procedure was to the family.

"It is fantastic we have this opportunity to take him but this is Plan A and there isn't a Plan B, C, D, E or F," she said. "This has to work - it's Gus's last chance.

"Part of me is worried it won't work but it's very positive and other kids who have had it done have had great outcomes."

The mother of four said just recently Gus was having seizures every 15 minutes and had to be hospitalised.

"For Gus they are telling us he won't be seizure or medication-free but there could be great improvements and reductions in medication numbers and seizure numbers," she said.

"Our neurologist has told us we need Texas because nothing else is working."

Five years ago Angus had his first cardiac arrest and since then his health has declined.

"We have a video of him at a daycare he used to go to - he was four or five - and I am his mother and I have trouble believing it is the same child," Sonya said.

"He was so cheeky and full of conversation, it is just unbelievable.

"We might be getting to know a new child after his treatment - it's hard to know what to think."

Sonya and Phil have had to endure significant anguish as parents and have watched their gorgeous boy endure a kidney transplant, endless seizures and an inability to do activities others take for granted.

Obtaining the funds to travel to Texas has also been difficult but the parents are determined to give Angus the best opportunity for a great future.

"We promised him we would do everything we can for him and we have to do this," Sonya said.

"If it doesn't work we will at least know we did everything we could."

Sonya said the majority of people had been kind and supportive to the family and she was touched by the community's willingness to embrace Angus.

"We have only been here for two and a half years but everyone has gone out of their way to help us," she said. "I told my mum I am never moving back that side of the Gap again. This is our home now."

Of all the people who have rallied around the family, Sonya said Maryvale Pub's Dennis Reynolds had a special place in their hearts.

He initiated fundraising for the family and helped make the Texas trip possible.

"When we couldn't get Gus to drink we said 'let's go to the pub and see Dennis and have lemonade and it always worked. Angus thinks the world of Dennis," she said.