Father Phil Bowles with 8-year-old Angus who is one of only 165 people world-wide diagnosed with Pallister-Hall Syndrome.
Father Phil Bowles with 8-year-old Angus who is one of only 165 people world-wide diagnosed with Pallister-Hall Syndrome. Kirstin Payne

Family looks to America for life changing treatment

8-YEAR-OLD Angus Bowles has a passion for skydivers, likes to spend time with his turkey, 'Turkey McGurkey', and loves his mum, dad and Elmo.

Unfortunately life has been a little tougher for him than most boys his age as a one of only three people in Australia who suffer from Pallister-Hall Syndrome.

Diagnosed at just18 months of age the Angus has proved to be more resilient than most.

In his short life the bright-eyed Maryvale local has received a kidney transplant, survived 4 cardiac arrests and undergoes 5- 10 seizures on a daily basis.

" It is a team effort, there is always someone really close to him but there is never any warning before he has one, he just drops to the floor," Angus's mum Sonya Bowles said.

The seizures caused by a benign tumour on Angus's brain have remained un-operable until now.

A life changing operation unavailable in Australia could provide a sense of normality for Angus and his family in an attempt to reduce a tumour on his brain.

"The non-invasive laser treatment can shrink his tumour, but it is only available in America," Mrs Bowles said.

"A positive result would be a reduction in the number and intensity of seizures".

The family hopes Angus can receive the treatment by the end of the year at a children's hospital in either Phoenix or Arizona.

"If we don't have the operation things will deteriorate, I wouldn't say it's really a choice," Angus's dad Phil Bowles said.

With the surgery is expected to cost excess of $90,000 dollars, not including travel expenses Maryvale locals have pledged to raise funds at a charity cricket match to ensure both Sonya and Phil can both be by Angus's side.

"We have applied for government funding but that covers only part of the cost, and for one parent to go," Mr Bowles said.

"We could be there two weeks or more we don't know how long the treatment or recovery will go for at this stage".

One of the event's organisers Dennis Reynolds hopes to raise at least $10000 from the event.

"Angus comes in almost every day to say G'day and give me a hi-five," he said.

"Everybody has a right to a good life; if this operation can help improve it then this is something we have to do".

Cricket match will be followed by a $60 per head dinner and auction at Maryvale Hall on the evening of May 31.

Jeff Thomson who was rated one of the fastest bowlers of all time will be present on the night along with retired Australian coach John Buchanan.

Retired Test wicket keeper Ian Healy will be the key note speaker on the night.

Please Call

Please call Dennis Reynolds on 46661148 for sponsorship and information on the fundraising event.



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