_fct1024x768_ct1880x930.jpg "Brooke Dwan with her daughters Kennedy, 1 month, and Willow, 2.")
Payment cut cruel blow to families
THE Federal Government has cut essential funding for children and adults suffering from a rare genetic Inborn Error of Metabolism (IEM) disorder.
For these individuals a vital expensive medically prescribed diet, supplemented by the funding, is required to avoid brain damage, seizures, liver failure, coma and in some cases death.
Families and individuals who receive the grant have just been notified from the Federal Government that the grant will end at the end of the year, without any warning or consultation.
President of the Metabolic Dietary Disorders Association (MDDA), Monique Cooper said that removing the grant would mean that families risk not being able to afford to feed their children safely.
"The grant currently supplements some of the very expensive food costs. One box of specialised low protein cereal costs $14.65. A loaf of specialised low protein bread costs $10. Specialised low protein grated cheese costs $28.
"We are calling on the Federal Government to urgently reconsider their decision that will impact families who simply want to feed their children safely and IEM adults who now become a financial burden to their families."
Families seeking advice and support can contact MDDA for further information on 1800 288 460.
